We know that when you live with dementia, living well means living independently for as long as possible.
There are many innovations2 – ones that are just emerging, others with demonstrated results – that have improved early dementia diagnosis in primary care. And enhanced the community support after diagnosis.
Healthcare Excellence Canada hosted a webinar series to talk about the latest innovations in dementia care in the community. We’ll discuss what’s working and what isn’t. And help innovators figure out how they can spread and scale their innovation so more people living with dementia, and care partners can benefit.
The innovations being shared in this series are in keeping with the recommendations outlined in Canada’s national dementia strategy report, A Dementia Strategy for Canada: Together We Aspire.
This webinar discussion series has concluded, but you can register to be kept up to date about other related learning opportunities via HEC's newsletter.
We were very fortunate to have Mary Beth Wighton (Ontario Dementia Advisory Group, Dementia Advocacy Canada and Federal Ministerial Advisory Board on Dementia) and Mimi Lowi-Young (AGE-WELL NCE) lead the discussions with innovators in these webinars.
All recordings from this series can be viewed on demand via YouTube ». A summary of the discussion is included below the webinar description.
Webinar 12: Exploring Patient Navigation for People with Dementia, their Caregivers and the Care Team in Canada
Speakers: Shelley Doucet and Alison Luke, University of New Brunswick
Shelly and Alison shared an overview of how their pediatric patient navigation model could be used to improve access to post diagnostic support for people living with dementia, their care partners and care team in New Brunswick, and other jurisdictions.
Webinar 11: Learning from the Québec Experience
Speakers: Dr. Howard Bergman, Faculty of Medicine, McGill University; Yves Couturier and
Dr Claude Patry, Université de Sherbrooke
Learn about the experiences from the implementation and evaluation of the Québec Alzheimer plan. Our speakers shared knowledge translation tools they have developed to facilitate sharing of experience and lessons learned.
Webinar 10: Dementia Connections and Primary Healthcare Dementia Toolkit
Innovators: Deanna Butz and Lisa Gilchrist, Town of Stony Plain Family and Community Support Services, and Susan Savage, Nova Scotia Health Authority
Dementia Connections is a community volunteer program in Alberta that connects champions who have lived experience with other people living with dementia and care partners, and provides resources.
The Primary Healthcare Dementia Toolkit Pilot Project was developed and evaluated to enhance the comprehensiveness of dementia care in primary healthcare settings in Nova Scotia.
Webinar 9: Trualta and Hospitals Without Walls
Innovators: Jonathan Davis, Trualta, and Paul Young, Community Hospitals West
Trualta is a personalized, skills-based training platform for family members caring for aging loved ones living at home.
Hospitals without walls explores a new use of remote patient monitoring (RPM) technology to assist frail seniors living with or without dementia in Prince Edward Island to age at home longer.
Webinar 8: PC DATA
PC DATA (Primary Care Dementia Assessment & Treatment Algorithm) is a web-based set of clinical tools and algorithms designed to help family physicians and primary health care providers better understand and apply best practices in dementia care.
Webinar 7: Alzheimer Residences and By Us For Us Guides
A new residence created for people living with Alzheimer’s disease in Quebec City combines accommodation and home care, integrating the principles of other villages, farms and a GreenHouse project in the U.S. for those with Alzheimer’s.
By Us For Us Guides is a series of resources created by people living with dementia and partners in care, designed to enhance well-being, manage daily life and support competent and compassionate care after diagnosis.
Webinar 6: Winterlight Labs and DataDay
Winterlight Labs is a new tablet-based technology that has the potential to support early diagnosis of dementia in primary care through assessing cognitive health, including memory, thinking and reasoning.
DataDay, an app that provides post-diagnostic support for people with mild cognitive impairment or dementia, enables them to live safely at home and prevent unnecessary hospital visits.
Webinar 5: RaDAR and RRMC2.0
Rural Primary Health Care Memory Clinics (RaDAR) – one-day rural memory clinics operated by a primary care-based interprofessional team – are improving diagnosis, treatment and navigational supports for people living with dementia and care partners in rural Saskatchewan.
Rural and Remote Memory Clinic 2.0 (RRMC2.0) includes a suite of interventions delivered virtually by primary care-based interprofessional teams to improve early diagnosis of dementia and timely access to post-diagnostic support in rural and urban communities in Saskatchewan.
Webinar 4: NaviCare/SoinsNavi and the Neil and Susan Manning Cognitive Health Initiative
NaviCare/SoinsNavi is a research-based navigation centre improving navigation of post diagnostic care and support in the community for children and youth with complex care needs and their families in New Brunswick.
The Neil and Susan Manning Cognitive Health Initiative seeks to develop state-of-the-art digital tools for family physicians to assist with early diagnosis of dementia, integrate research evidence into patient care and follow dementia patients throughout Vancouver Island in a single, real-time Dementia Guidance System database.
Webinar 3: Mint Memory Clinic and eConsult
MINT Memory Clinics are primary care-based multispecialty, interprofessional teams, improving diagnosis of dementia, treatment and navigational supports for people living with dementia and care partners accessed from one place in the community, typically their family doctor's office.
eConsult is a secure web-based tool providing physicians and nurse practitioners with timely access to specialist advice for all patients, often eliminating the need for an in-person specialist visit.
Webinar 2: Primary Health Care Integrated Geriatric Services Initiative (PHC IGSI) and CO-desiGning demeNtia dIagnosis ANd post-diagnostic CarE (COGNISANCE)
Primary Health Care Integrated Geriatric Services Initiative (PHC IGSI): Connecting People and Community for Living Well is an innovation that has worked in Alberta to support people living with dementia and care partners in the community.
CO-desiGning demeNtia dIagnosis ANd post-diagnostic CarE (COGNISANCE) is an international research project that will create toolkits and campaigns to improve the dementia diagnostic process and post-diagnostic support.
Webinar 1: Introduction and Ontario Health - Quality Standards
Healthcare Excellence Canada provided an overview of the Community Dementia Care and Support webinar discussion series, and participants discussed Ontario Health’s Quality Standards and associated resources designed to help improve care for people living with dementia and care partners in the community.
1 Public Health Agency of Canada. A Dementia Strategy for Canada: Together We Aspire. 2019. Available from: https://www.canada.ca/content/dam/phac-aspc/images/services/publications/diseases-conditions/dementia-strategy/National%20Dementia%20Strategy_ENG.pdf
2 Within healthcare, an innovation can be a practice, policy or program that is novel in that it is proven to be more effective than the status quo – enhancing or outperforming the way care is currently delivered, funded or governed and improving experience and outcomes for patients, caregivers and families.