Powerful Partnerships: A Handbook for Families and Providers Working Together to Improve Care

"This guide is written for family members and healthcare providers who are working together to improve healthcare for children. It emphasizes the equal role that parents and providers play in child healthcare and the value of team based, collaborative healthcare. The guide includes an introduction to the value of working together and learning collaboratives, a section designed for parents/families and a section designed for practitioners. The section for parents includes stories from other parents who are working with providers, examples of parent involvement in collaboratives, and tips to maximize your effectiveness as a patient advisor. The section for providers includes advice on understanding the patient experience, tips for providers working with parents, and suggestions and examples on how to partner with parents to improve care. "